Last week I published a post about Carrie Martin and her story of life with Wilson’s Disease. We decided to share weekly diaries and details of what it is like to live with the condition.
This week, Carrie would like to bring attention to the medication that comes along with each day.
On a daily basis, Carrie takes 17 tablets a day, which have been prescribed to her by her doctor and specialists. Here is a list below of what she is currently prescribed:
This stops Carrie from crying.
This is a pain killer.
This one again, is a pain killer.
Zinc Sulfate 125mg Effervescent
This stops her body from absorbing copper.
This takes the copper away from her body.
Each of the above are taken at different times of the day in different amounts.
All of which make you realise how many different emotions and side effects are associated with Wilson’s and what it takes to reduce emotional levels and reduce the pain that a person is suffering from.
Considering it is a condition which can affect your memory, on different levels for each individual, I cannot stress how important it is for a person to take their medication. A person can easily become too easily distracted as it is, before they even think about remembering to take their medication.
Also, it is important to think about how tired a person can be when suffering from Wilson’s. But the important thing is, is that the medication does its job and helps to prevent the worsening to a person’s health.
According to Mayo Clinic, the most common medication is:
- Penicillamine (Cuprimine, Depen) A chelating agent, penicillamine can cause serious side effects, including skin problems, bone marrow suppression and worsening of neurological symptoms.
- Trientine (Syprine) Trientine works much like penicillamine but tends to cause fewer side effects. Still, there is a risk that neurological symptoms can worsen when taking trientine, though it’s thought to be a lower risk than is penicillamine.
- Zinc acetate (Galzin) This medication prevents your body from absorbing copper from the food you eat. Zinc acetate can cause stomach upset.
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Do you know anyone who currently has Wilson’s Disease? Do you know anyone who has suffered from it in the past and you would like to spread awareness?
It’s never too late to spread awareness for such a good cause. You can start now. Whether you share this story, promote your own, raise awareness of the symptoms and effects it has on your life or others – the choice is yours.
Just remember, no one choose to have such a disease. It would be amazing if we could stop such conditions but unfortunately this world can be cruel. Let’s bear in mind though that, it can also be kind, we can work together to spread awareness worldwide for such important causes.
Stay posted for next week’s post where you’ll hear from members of Carrie’s family and how it has affected their lives as well as her own.